authors:subjects:- Great Britain. National Health Service.
- Cystic fibrosis in children
- Cystic fibrosis -- Patients
publishers:ISBN:- 0415336716 (pbk.)
- 9780415336710
notes:- Includes index.
- Bibliography: p. 257-266.
- Preface iv -- Foreword viii -- Acknowledgements x -- Chapter 1: Beginnings 1 -- Chapter 2: It's not what you say - the diagnosis 13 -- The healthcare system: understanding system complexity 24 -- The societal context: cultural backdrop 38 -- At the front line: the consultation 41 -- Unresolved questions: insight and performance 59 -- Chapter 3: Home and away - sharing care 63 -- The healthcare system: care in the community 83 -- The societal context: the child first and always? 101 -- At the front line: trust and transfers 106 -- Unresolved questions: the right to life 126 -- Chapter 4: No room at the inn 133 -- The healthcare system: understanding workforce issues 146 -- The societal context: tiers, teams and tribalism 164 -- At the front line: making a difference 171 -- Unresolved questions: informed choice 191 -- Chapter 5: Sorry seems to be the hardest word 195 -- The healthcare system: understanding system error 209 -- The societal context: no fault compensation? 220 -- At the front line: dealing constructively with complaints 227 -- Unresolved questions: liability for manslaughter 246 -- Chapter 6: Testing times 249 -- The healthcare system: evidence-based care 262 -- The societal context: rationalising or rationing? 281 -- At the front line: living with risk and uncertainty 286 -- Unresolved questions: first, do no harm 306 -- Chapter 7: Hard graft - transplant decisions 311 -- The healthcare system: competence and informing consent 325 -- The societal context: all changed, changed utterly 340 -- At the front line: junior partners 346 -- Unresolved questions: organ donation 360 -- Chapter 8: Endings 366 -- Afterword 384 -- Bibliography 385.
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