Living with the genome : ethical and social aspects of human genetics /

• Clarke, Angus, 1954-
• Ticehurst, Flo

• Human genome -- Social aspects.
• Human genome -- Moral and ethical aspects.
• Medical genetics -- Social aspects
• Medical genetics -- Moral and ethical aspects

• Palgrave Macmillan,

• 1403936218 (pbk.)
• 140393620X (hbk.) :

• 60.00

• Includes bibliographies and index.
• Acknowledgements - List of Contributors - Glossary - Introduction; A.Clarke - PART 1: THE HUMAN GENOME PROJECT: GENETIC RESEARCH & COMMERCIALISATION - Introduction; A.Clarke & F.Ticehurst - Celera Genomics: The Race for the Human Genome Sequence; M.A.Fortun - Human Genome Project as a Social Enterprise; P.L.Bereano - Commercialization of Human Genetic Research; T.Caulfield - Patenting of Genes: A Personal View; J.Rifkin - Human Genome Diversity Project (HGDP): Impact on Indigenous Communities; J.Marks - deCODE and Iceland: A Critique; E.Arnason & F.Wells - Informed Consent in Human Genetic Research; P.R.Reilly - Gene Therapy: Expectations and Results; P.A.Martin - PART 2: GENETIC DISEASE: IMPLICATIONS FOR INDIVIDUALS, FAMILIES AND POPULATIONS - Introduction; A.Clarke & F.Ticehurst - Genetic Counseling: Psychological Issues; B.B.Biesecker - Genetic Testing of Children; A.Procter - Genetic Risk; L.Prior - Genetic Susceptibility; C.Emslie & K.Hunt - Thrifty Gene Hypothesis: Challenges; R.McDermott - Carrier Screening for Inherited Hemoglobin Disorders in Cyprus and the United Kingdom; B.Modell - Carrier Screening of Adolescents in Montreal; C.R.Scriver & J.J.Mitchell - PART 3: DISABILITY, GENETICS & EUGENICS - Introduction; A.Clarke & F.Ticehurst - Nazi Movement and Eugenics; P.Weindling - Eugenics: Contemporary Echoes; T.Duster - China: The Maternal and Infant Health Care Law; S.Guo - Disability, Human Rights and Contemporary Genetics; T.Shakespeare - Mentally Handicapped in Britain: Sexuality and Procreation; J.McCarthy, V.Sinason & S.Hollins - PART 4: GENETICS & SOCIETY: INFORMATION, INTERPRETATION AND REPRESENTATION - Introduction; A.Clarke & F.Ticehurst - Gene as a Cultural Icon; D.Nelkin - Heredity: Lay Understanding; M.Richards - Inheritance and Society; P.Atkinson, A.Bharadwaj & K.Featherstone - Privacy and Genetic Information; V.English & A.Sommerville - Insurance and Genetic Information; T.McGleenan - 'Race', IQ and Genes; J.Beckwith &.

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